HANDLE

A few months ago I picked up a book called The Fabric of Autism by Judith Bluestone. Ms. Bluestone, herself afflicted with Asperger's Syndrome, combines neuroscience with what she learned from her own personal experiences to illustrate the role played by the nervous system in shaping the dysfunctions associated with autism spectrum disorders.

Ms. Bluestone links the information she sets forth, "weaving" it into a single treatment modality, aimed at repairing and retraining the body's sensory systems, allowing the individual with autism to function with fewer obstacles and impairments. This modality is the basis for the HANDLE Institute, which she founded in 1994. HANDLE, which stands for Holistic Approach to NeuroDevelopment and Learning Efficiency, incorporates elements from a wide range of theories and places an emphasis on individual obstacles and functioning over diagnostic labelling.

I was not very far into my reading of this insightful book before I determined to pursue this approach for Austin. Two weeks ago, Austin had his HANDLE evaluation at the hands of three very lovely and knowledgeable women. It has been almost 11 years since Austin was first evaluated and bestowed with the useless label of Pervasive Developmental Disorder--Not Otherwise Specified (PDD-NOS). Since then, he and I have endured many different scrutinizing evaluations--many of which were useful, but all of which have made me feel violated, sick, and sad. This is the first time my sweet son has been addressed as a party to his own treatment. Every aspect of the process was explained directly to him, including the treatment recommendations. They sat and explained to him how his brain works and continued speaking to him even when he had very obviously stopped listening. The whole process was so warm and respectful that Austin became very animated and interactive with the evaluators. At no point did I feel that he was devalued as a human being and reduced to the sum of his weaknesses. What a gift!

Without boring you with the details, I will say that the information gained from the HANDLE evaluation process was very interesting and gave us new insights into certain quirks or difficulties Austin has. He now has 14 activities that we perform with him each day. Most of these are very, very short, and all of them together take about 30 minutes total to do. Already we are seeing an increase in independence, some improvement in his sleep habits, and a greater inclination to conversation. I am excited to see what gains lie ahead for him.